The World Federation of Hemophilia (WFH) have set April 17, 2023 as World Hemophilia Day. The theme of the event this year is “Access for All: Prevention of bleeds as the global standard of care”. Building on last year’s theme, the call to action for the community in 2023 is to come together and advocate with local policy makers and governments for improved access to treatment and care with an emphasis on better control and prevention of bleeds for all people with bleeding disorders (PWBDs). This means the implementation of home-based treatment as well as prophylactic treatment to help those individuals have a better quality of life.
From the WFH recent annual survey we can see that 70% of the world’s haemophiliacs remain untreated.
There simply isn’t enough Factor VIII produced to treat them all. And, at the current pricing, for many, it remains out of reach..
Go to https://wfh.org/world-hemophilia-day/ for the whole story